Official Title
Developing a Mobile Application for the Care of Children With Gastrostomy and The Effect of the Application on Gastrostomy Complications, Parental Care Burden, Self-Efficacy, and Anxiety Levels
Brief Summary

Parents of children with gastrostomy have problems with the selection and preparation ofnutritional products and catheter care during home care. Parents express that they wantto receive practical training in the process of home care of the child with gastrostomy,they want to communicate more with the team and they need continuous monitoring to solvethe problems encountered effectively. In this context, it is aimed to establish anappropriate training programme for the care of children with gastrostomy, to providecounselling and follow-up.Digital health technologies are divided into different sub-branches. Mobile healthapplications constitute one of these structures. Mobile health applications are used inelective surgical interventions in pediatric surgery (tonsillectomy, hernia repair,circumcision, etc.) and in the home care process after organ transplantation. Inpediatric surgery, many mobile health applications have been developed to support painmanagement, symptom monitoring, medication adherence, support care processes,postoperative follow-up and self-management processes. In mobile health applications, nomobile application has been found for the use of parents of children with gastrostomy. InTurkey, there is no known nursing study for the use of parents of children withgastrostomy. The aim of this study is to develop a mobile application for the care ofchildren with gastrostomy and to determine the effect of the application on gastrostomycomplications, care burden of parents, self-efficacy and anxiety level.

Detailed Description

Parents of children with gastrostomy have problems with the selection and preparation of
nutritional products and catheter care during home care. Parents express that they want
to receive practical training in the process of home care of the child with gastrostomy,
they want to communicate more with the team and they need continuous monitoring to solve
the problems encountered effectively. In this context, it is aimed to establish an
appropriate training programme for the care of children with gastrostomy, to provide
counselling and follow-up.

Digital health technologies are divided into different sub-branches. Mobile health
applications constitute one of these structures. Mobile health applications are used in
elective surgical interventions in pediatric surgery (tonsillectomy, hernia repair,
circumcision, etc.) and in the home care process after organ transplantation. In
pediatric surgery, many mobile health applications have been developed to support pain
management, symptom monitoring, medication adherence, support care processes,
postoperative follow-up and self-management processes. In mobile health applications, no
mobile application has been found for the use of parents of children with gastrostomy. In
Turkey, there is no known nursing study for the use of parents of children with
gastrostomy. The aim of this study is to develop a mobile application for the care of
children with gastrostomy and to determine the effect of the application on gastrostomy
complications, care burden of parents, self-efficacy and anxiety level.

This research was planned in two stages as follows:

In the first stage, it was aimed to develop a mobile application supported education
programme (G-MUEP) for the care of children with gastrostomy.

In the second stage, it was aimed to evaluate the effectiveness of G-MUEP.

For this purpose, the hypotheses of the research are as follows:

Parents using G-MUEP are more effective than the parents in the control group; Hypothesis
1 (H1): care burden is less. Hypothesis 2 (H1): their self-efficacy is higher. Hypothesis
3 (H1): anxiety levels are lower. Compared to the children in the control group, the
children of the parents using G-MUEP; Hypothesis 1 (H1): gastrostomy-related complication
findings are less.

Not yet recruiting
Neuromuscular Diseases
Gastrointestinal Diseases

Other: Mobile Application Supported Education Program (G-MUEP)

Parents who meet the inclusion criteria will use the Mobile Application Supported
Education Program (G-MUEP).

Eligibility Criteria

Inclusion Criteria:

- The gastrostomy was opened for the child within the last six months,

- The parent's willingness to participate in the study,

- The parent is literate in Turkish,

- Parental use of mobile devices,

- The parent has internet access,

- The parent has no communication barriers.

Exclusion Criteria:

-The parent has internet access problems.

Eligibility Gender
All
Eligibility Age
Minimum: 19 Years ~ Maximum: 70 Years
Countries
Turkey
Locations

Turkey
Antalya, Turkey

Not Provided

Akdeniz University
NCT Number
Keywords
Care burden
Parent education
Gastrostomy, Nursing
M-health application
Self-efficacy
MeSH Terms
Gastrointestinal Diseases
Digestive System Diseases
Neuromuscular Diseases