RAISE Workshop Series Summaries

During the RAISE Kickoff session, we had welcome remarks from Susan Winkler, CEO of the Reagan-Udall Foundation, and RDML Richardae Araojo, FDA Associative Commissioner for Minority Health and Director of the Office of Minority Health and Health Equity.  During the session we heard five presentations on the importance of and barriers to reporting, collecting, and curating race and ethnicity data in health care.

During RAISE workshop II, we had welcome remarks from Susan Winckler, CEO of the Reagan-Udall Foundation, and RDML Richardae Araojo, FDA Associate Commissioner for Minority Health and Director of the Office of Minority Health and Health Equity. During the session we heard two presentations. First, Dr. Leo Russo of Pfizer, Inc., provided a framework on improving diversity in clinical trial recruitment. Next, Kate de Lisle of Leavitt Partners, presented an overview of how the value-based payment system advances health equity. The session was closed with a discussion moderated by Dr. Amy Abernethy.

During RAISE workshop III, we had welcome remarks from Susan Winckler, CEO of the Reagan-Udall Foundation, and RDML Richardae Araojo, FDA Associate Commissioner for Minority Health and Director of the Office of Minority Health and Health Equity. During the session we heard three presentations. First, Dr. Carla Rodriguez-Watson, RAISE PI, summarized our previous RAISE workshops and their connection to workshop III. Then, Meredith Welsh described how SameSky Health works with diverse populations to help them engage with the health care system and the infrastructure needed to collect the necessary data to develop actionable insights. Finally, Andrew Kress of HealthVerity presented an overview of the infrastructure used to support the robust capture of multi-level and longitudinal race and ethnicity data (R&E). The session closed with a discussion moderated by Dr. Oscar Benavidez of Massachusetts General Hospital.

During RAISE workshop IV, we had welcome remarks from Susan Winckler, CEO of the Reagan-Udall Foundation, and Dr. Christine Lee-Flemming, Strategic Research Engagement Lead of the Office of Minority Health and Health Equity at the FDA. During the session we heard three presentations. First, Dr. Carla Rodriguez-Watson, RAISE PI, summarized our previous RAISE workshops and their connection to workshop IV. Then, Silas Buchanan of the Institute for eHealth Equity described how cultural humility and community partnerships can be used to improve health equity. Finally, Aparna Sridhar of Epic Systems presented on technology at Epic Systems that meet workflow and individuality needs. The session closed with a discussion moderated by Dr. Elizabeth Cohn of Hunter College.

During RAISE workshop V, Susan Winckler, CEO of the Reagan-Udall Foundation, and RDML Richardae Araojo, FDA Associate Commissioner for Minority Health and Director of the Office of Minority Health and Health Equity, welcomed everyone. During the session we heard three presentations. First, Dr. Carla Rodriguez-Watson, RAISE PI, summarized our previous RAISE workshops and their connection to workshop V. Then, Ronnie Tepp of Pyxis Partners presented a case study in community engagement and inclusion specifically focused on people of Middle Eastern or North African (MENA) descent. Finally, Dr. Susan Jenkins from the US Department of Health and Human Services discussed Statistical Policy Directive (SPD) 15, and the proposals to change SPD 15. The session closed with a discussion moderated by Sarah Greene, Senior Advisor to the National Academy of Medicine.