Real-World Accelerator to Improve the Standard of collection and curation of race and Ethnicity data in healthcare (RAISE)
There is currently incomplete and inconsistent capture of information about race and ethnicity in real-world data (RWD). This limits a full understanding of the distribution, safety, and effectiveness of FDA-regulated products, which impacts the health of the public.
To address this, the Reagan-Udall Foundation for the FDA has launched RAISE to improve the capture and curation of race and ethnicity data in health care settings as a means of ultimately improving quality of health care and medical products.
Through RAISE, the Reagan-Udall Foundation for the FDA will:
- Convene a series of community workshops with leaders across the health care ecosystem to create opportunities to share, learn, and build capacity to advance solutions
- Develop a multi-dimensional tool that will help prioritize strategies to improve the capture and curation of race and ethnicity data, based on the barriers and solutions discussed in these community meetings
RAISE will include 11 community workshops from January – June 2023. RAISE will cover topics that influence the continuum of race/ethnicity data in health care settings.
This project is supported by the U.S. FDA of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award (FAIN) totaling $499,514 (100% of the project)